Living A Normal Life with Chronic Illness

I started a series on this for my Youtube Channel and I know I mentioned in another Chronic Wednesday post that “life may be different but it’s not over”. For me, I have adapted my routine to still include all the things I love to do, allowing me to live a normal life despite having a chronic illness.

I’ll give you a few examples of what I mean.

Working

Well, I’d be lying if I said I enjoy working all of the time, but it does give me something to do and I pride myself on being able to pay my way. How else would I be able to afford all my make-up and epic holidays?

I will not lie working can be challenging and nearly impossible at times. During the week I really don’t do very much except work and come home. I may work on content for the blog and Youtube but that’s usually done from the comfort of my bed. It’s been difficult admitting my limitations at work but I have got better as time has gone on. Taking time off due to my health is still tough for me but I’m working at it. I am fortunate enough to still be in a position where I can work full time but I’m completely aware this may not always be the case if my condition deteriorates.

Socialising and Nights Out

My socialising and nights out are definitely on the decline since being diagnosed. As I mention in the video my main issue is avoiding sick people as being immunosuppressed makes catching normal colds or flu very dangerous. In addition to this, I need to save energy in preparation. Since I don’t do much during the week I’m usually okay to have the occasional unplanned lunch out or shopping trip but nights out always need to be planned in advance so I can get my nap in and clear my schedule for the following day.

Travelling

If you know me or have been following me for a while you will know I have a passion for travelling. I know some may not consider it “travelling” since I’m not slumming it, staying in hostels or backpacking. However, I for one do not like bugs or unkept communal spaces. Personally, the joy of travelling comes from experiencing other cultures, learning a bit about their history and indulging in the cuisine, where you stay is pretty much irrelevant. Obviously staying the more tourist-driven areas does not provide you with a completely authentic experience but I am aware of that.

READ  Dealing with Chronic Pain

Personally, the joy of travelling comes from experiencing other cultures, learning a bit about their history and indulging in the cuisine, where you stay is pretty much irrelevant. Obviously, staying in the more tourist-driven areas does not provide you with a completely authentic experience but I am aware of that.

As for dealing with my illness, I have always been one for a chill holiday so I haven’t had to give up mountaineering or rock climbing. The main considerations I have had to make is ensuring that I take enough medication and building in enough rest time.

Working Out

Since my conditions give me quite a few physical limitations it’s been difficult to come to terms with the variance in my ability from day to day. Prior to being diagnosed, I will be completely honest I was not very active at all. I still struggle and have frequent setbacks from joint pain, muscle pains and bouts of normal colds. I always listen to my body and never push myself as that the easiest way to throw myself into a flare. Working out has been the biggest frustration for particularly trying to be consistent in order to combat the steroid weight gain but body usually isn’t cooperative, but still, I persist.

Prior to being diagnosed, I will be completely honest I was not very active at all. I still struggle and have frequent setbacks from joint pain, muscle pains and bouts of normal colds. I always listen to my body and never push myself as that the easiest way to throw myself into a flare. Working out has been my biggest frustration, particularly trying to be consistent in order to combat the steroid weight gain but my body usually isn’t cooperative, but still, I persist.

These are the main areas where I have had to make concessions but as I mentioned at the beginning of the post just about everything is affected. What adaptions have you made? How do you manage to still do things you enjoy? I’d love to hear about it in the comments below.

 





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